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Taking care of a terminally ill parent

It's not a pleasant sight, but it's just skin. It's not fun cleaning up an invalid elder's dirty diaper, either, of either sex. You just do what you have to do and soldier on.

She's lost her inhibitions. You may see worse than that.
 
Hang in there SP. Goes without saying, with the quality of advice I've seen here and having been through a bit of it with my grandmother, we're here for you. And although it's been said, many times, many ways, don't be hard on yourself.
 
The one thing I've learned over the past few days, is that as much as I've heard the well-intentioned advice of taking care of myself, sometimes you just have to suck it up and do what needs to be done.

I'd love to have a good night's sleep again, but if it means that she gets up the middle of the night, falls and splits her head open, I'd be negligent. It's already happened and both she and I are lucky it wasn't worse than it was.

I'd love to go to the gym and get in my normal workouts, but if it gives her a chance to wander off and go into traffic, that's on me.

It would be great if someone else can share this burden, but we don't have the money to pay somebody and everyone else has jobs. Eventually we'll work out a schedule, but until then fair or not, this falls on me. The logistical and financial stuff is more what my brothers are doing and I tend to stay out of that.

It may not be fair, but it's not fair that she has cancer and probably won't be around to go to her oldest granddaughter's high school graduation in a few months.

I know of high school kids who work a full-time third-shift job to help support their families, put in a full day at school and play sports. I'm a grown man and I really shouldn't be whining about something that is probably just a minor inconvenience in the grand scheme of things.
 
Just had a rather heated argument with an EMT. There was a document that we signed when she went into hospice that said do not transport and do not revive. The first night she fell an EMT took it. He said legally they have to transport her without the form. Not my fault they took it.

Also said Elder Services could step in. Hope that doesn't mean I'm in trouble.

I don't want to get arrested for something that's not my fault.
 
She's in respite at a rehab facility for five days. We're going to have somebody in to look after her, but we need to figure out a schedule of when they could do it and when we would do it.
 
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At the respite place, they found her out of her bed on the floor at 4 a.m., but she was not hurt. They're evaluating her tomorrow.
 
That's good. It goes with what you reported, and it's documented in their records now.

Glad she wasn't hurt.
 
Just had a rather heated argument with an EMT. There was a document that we signed when she went into hospice that said do not transport and do not revive. The first night she fell an EMT took it. He said legally they have to transport her without the form. Not my fault they took it.

Also said Elder Services could step in. Hope that doesn't mean I'm in trouble.

I don't want to get arrested for something that's not my fault.

If I'm not mistaken, I don't think you would be in trouble with Elder Services unless you were actually abusing her in some way. It's not like the child abuse folks. Elder Services may actually try to help you and your mom in some way instead of being accusatory.

Hang in there. You're doing great.
 

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